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ActiveVoices™ Participation Agreement

By clicking on this box, you should acknowledge and agree that your participation in the ActiveVoices program is completely voluntary. You understand that the role of your Mentor is to provide you with information about his or her own personal experiences living with MS and MS therapies. Your Mentor is an MS patient—not a physician or nurse with medical expertise. Therefore, your Mentor is trained not to provide you with, and you should not rely upon your Mentor for, medical treatment advice. You should understand that your MS and treatment experiences may differ from your Mentor's experiences and that any questions you have about possible side effects, risks or potential benefits of treatment, adverse events, or your MS disease course should be directed to your own health care provider. You also understand that your Mentor is a volunteer and Biogen Idec does not compensate your Mentor for providing you with the mentoring services. Your Mentor does not speak on behalf of or represent Biogen Idec. Your mentor is limited in what he or she can say about Biogen Idec's products by rules from the Food and Drug Administration to information that is consistent with the applicable product's approved label. You may stop participating in the ActiveVoices Mentor program at any time. If you have any concerns or questions about what your Mentor says to you, your relationship with your Mentor, or the ActiveVoices program in general, please feel free to contact MS ActiveSource at 1-800-456-2255.

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Joann D., Diagnosed with MS in 1993, Female, 45-54, Other

How did you first find out about your relapsing MS?

I woke up on a Sunday morning with double vision. I have worn glasses since I was a young child and thought there was a serious problem with my eyes. I called my eye doctor and went in to see him the next day. He then sent me to see a Neuro-opthomologist who sent me for an MRI. Within three days I was sitting in my doctors office being told I had MS.

What emotions did you experience when first diagnosed with relapsing MS?

I was angry, why was this happening to me? My life was going well. Our son was finally healthy at five year old. We wanted to have more children. It was not fair.

How has your outlook changed today regarding your relapsing MS?

It is something you can live with. It is all how you choose to deal with it.

What would you say to someone who has found out they have relapsing MS?

It is not the end of the world, it just changes things on you. There are treatments available that can and do help. Get in touch with your local MS Society Chapter. The information they will provide you is unreal. Take advantage of them, they are there for you.

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