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ActiveVoices™ Participation Agreement

By clicking on this box, you should acknowledge and agree that your participation in the ActiveVoices program is completely voluntary. You understand that the role of your Mentor is to provide you with information about his or her own personal experiences living with MS and MS therapies. Your Mentor is an MS patient—not a physician or nurse with medical expertise. Therefore, your Mentor is trained not to provide you with, and you should not rely upon your Mentor for, medical treatment advice. You should understand that your MS and treatment experiences may differ from your Mentor's experiences and that any questions you have about possible side effects, risks or potential benefits of treatment, adverse events, or your MS disease course should be directed to your own health care provider. You also understand that your Mentor is a volunteer and Biogen Idec does not compensate your Mentor for providing you with the mentoring services. Your Mentor does not speak on behalf of or represent Biogen Idec. Your mentor is limited in what he or she can say about Biogen Idec's products by rules from the Food and Drug Administration to information that is consistent with the applicable product's approved label. You may stop participating in the ActiveVoices Mentor program at any time. If you have any concerns or questions about what your Mentor says to you, your relationship with your Mentor, or the ActiveVoices program in general, please feel free to contact MS ActiveSource at 1-800-456-2255.

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Michael S., Diagnosed with MS in 1985, Male, 55-64, Married

How did you first find out about your relapsing MS?

I visited a dermatologist, when I developed (in a 1970 high school English class) an insatiable itching along my left arm, inconclusively attributed to Soakey (brand) bubble bath. The doctor took one look at it, remarked how it followed the path of a nerve, was certainly not an allergic reaction or skin problem, and referred me immediately to a neurologist.

What emotions did you experience when first diagnosed with relapsing MS?

None. It made no difference, at that point in time.

How has your outlook changed today regarding your relapsing MS?

I am continually frustrated, but live by one major dictum, that being more interested in showing you what I CAN do, as opposed to what I canNOT do! I refuse to be some whiney loser, moaning "woe is me" ... I have no room for losers with dysfunctional attitudes!

What would you say to someone who has found out they have relapsing MS?

Start RIGHT NOW assessing what you CAN do, in priority of importance to you and your family. Begin, RIGHT NOW, getting in touch with your most relevant MS Society and/or an MS Community Ambassador. Do not wait until tomorrow!

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