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ActiveVoices™ Participation Agreement

By clicking on this box, you should acknowledge and agree that your participation in the ActiveVoices program is completely voluntary. You understand that the role of your Mentor is to provide you with information about his or her own personal experiences living with MS and MS therapies. Your Mentor is an MS patient—not a physician or nurse with medical expertise. Therefore, your Mentor is trained not to provide you with, and you should not rely upon your Mentor for, medical treatment advice. You should understand that your MS and treatment experiences may differ from your Mentor's experiences and that any questions you have about possible side effects, risks or potential benefits of treatment, adverse events, or your MS disease course should be directed to your own health care provider. You also understand that your Mentor is a volunteer and Biogen Idec does not compensate your Mentor for providing you with the mentoring services. Your Mentor does not speak on behalf of or represent Biogen Idec. Your mentor is limited in what he or she can say about Biogen Idec's products by rules from the Food and Drug Administration to information that is consistent with the applicable product's approved label. You may stop participating in the ActiveVoices Mentor program at any time. If you have any concerns or questions about what your Mentor says to you, your relationship with your Mentor, or the ActiveVoices program in general, please feel free to contact MS ActiveSource at 1-800-456-2255.

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Peer Mentor Profile

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Leslie S., Diagnosed with MS in 1998, Female, 55-64, Married

How did you first find out about your relapsing MS?

I was diagnosed with MS in Oct of 1998. I had had about 3 episodes in the previous 2-3 years. The first 2 episodes my legs went numb and were very cold and tingly. The doctor had diagnosed me with a pinched nerve. The 3rd episode I went numb all through my chest and down my legs. My doctor then sent me to a neurologist. This was in 1998. I had an MRI and it was indicative of MS.

What emotions did you experience when first diagnosed with relapsing MS?

At first I was fearful of what I was going to experience. I did cry a bit. My sister in law had been diagnosed with MS prior to me being diagnosed and I called her to see how she had dealt with her disease. She advised me to stay as positive as possible and keep working as long as I could. I tried to but it is hard to be positive when parts of your body don't want to work the way they used to. I felt a sense of loss when my hands became very tingly and had a loss of coordination.

How has your outlook changed today regarding your relapsing MS?

I am still a little fearful, but I try to have a positive attitude about my future. I try to do things to keep me from constantly thinking about my MS. I know there are a lot of things I used to do that are difficult for me now so I think of alternative activities that I can do.

What would you say to someone who has found out they have relapsing MS?

For me this is part of my life's journey. My journey changed directions - you just go at a different speed than before. Try not to feel guilty when you have to rest and take it easy. Remember your health is the most important. If there is something you really want to do conserve your energy by resting the day before or plan to have a rest day the day after. Schedule your life, house cleaning, outside activities and rest time.

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