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ActiveVoices™ Participation Agreement

By clicking on this box, you should acknowledge and agree that your participation in the ActiveVoices program is completely voluntary. You understand that the role of your Mentor is to provide you with information about his or her own personal experiences living with MS and MS therapies. Your Mentor is an MS patient—not a physician or nurse with medical expertise. Therefore, your Mentor is trained not to provide you with, and you should not rely upon your Mentor for, medical treatment advice. You should understand that your MS and treatment experiences may differ from your Mentor's experiences and that any questions you have about possible side effects, risks or potential benefits of treatment, adverse events, or your MS disease course should be directed to your own health care provider. You also understand that your Mentor is a volunteer and Biogen Idec does not compensate your Mentor for providing you with the mentoring services. Your Mentor does not speak on behalf of or represent Biogen Idec. Your mentor is limited in what he or she can say about Biogen Idec's products by rules from the Food and Drug Administration to information that is consistent with the applicable product's approved label. You may stop participating in the ActiveVoices Mentor program at any time. If you have any concerns or questions about what your Mentor says to you, your relationship with your Mentor, or the ActiveVoices program in general, please feel free to contact MS ActiveSource at 1-800-456-2255.

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Kelly C., Diagnosed with MS in 1996, Female, 45-54, Married

How did you first find out about your relapsing MS?

I woke up with a vision problem in both eyes, so I visited my regular doctor, who referred me to an ophthalmologist for a check-up. The eye doctor sent me for an MRI, and then explained the results of this indicated a possible Multiple Sclerosis diagnosis, and referred me to a neurologist. The neurological exam and MRI evaluation confirmed MS.

What emotions did you experience when first diagnosed with relapsing MS?

I was bewildered and in shock. I immediately researched information on MS.

How has your outlook changed today regarding your relapsing MS?

I am generally an optimist. I like researching newly developed medicines/treatment when available and hope for the best.

What would you say to someone who has found out they have relapsing MS?

Do not panic. Remember that MS is not a death sentence. If you MUST contract an incurable neurological disease, this is the right one. Be sure to find a neurologist who specializes in MS, and get on one of the MS disease-modifying drugs right away. Do not pay too much attention to horror stories you hear or read from sources that are not knowledgeable or reliable, and be sure to locate reliable lines of communication to be sure you keep up to date on MS treatment and research, and remember YOU ARE NOT ALONE. There are many of us who have been through some of what you're going through now. Talk to someone and figure out how you can handle this and move on to the next day. We all have confidence in you, YOU CAN DO IT.

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