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ActiveVoices™ Participation Agreement

By clicking on this box, you should acknowledge and agree that your participation in the ActiveVoices program is completely voluntary. You understand that the role of your Mentor is to provide you with information about his or her own personal experiences living with MS and MS therapies. Your Mentor is an MS patient—not a physician or nurse with medical expertise. Therefore, your Mentor is trained not to provide you with, and you should not rely upon your Mentor for, medical treatment advice. You should understand that your MS and treatment experiences may differ from your Mentor's experiences and that any questions you have about possible side effects, risks or potential benefits of treatment, adverse events, or your MS disease course should be directed to your own health care provider. You also understand that your Mentor is a volunteer and Biogen Idec does not compensate your Mentor for providing you with the mentoring services. Your Mentor does not speak on behalf of or represent Biogen Idec. Your mentor is limited in what he or she can say about Biogen Idec's products by rules from the Food and Drug Administration to information that is consistent with the applicable product's approved label. You may stop participating in the ActiveVoices Mentor program at any time. If you have any concerns or questions about what your Mentor says to you, your relationship with your Mentor, or the ActiveVoices program in general, please feel free to contact MS ActiveSource at 1-800-456-2255.

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Peer Mentor Profile

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Carol A., Diagnosed with MS in 1999, Female, 55-64, Married

How did you first find out about your relapsing MS?

I started suspecting I had MS when I first experienced numbness in my fingertips and then as time went on I had numbness come and go in various parts of my body. It took me 10 years to find a doctor that took my symptoms seriously and began running the right tests to determine that I had MS.

What emotions did you experience when first diagnosed with relapsing MS?

Disappointed that I did have MS but I was not surprised as I had suspected I had MS because of the numbness episodes. In one sense it was a relief because now I knew what I was dealing with.

How has your outlook changed today regarding your relapsing MS?

It is a livable disease. I have had to make adjustments to my life style. I try not to focus on what I cannot do anymore, but focus instead on what I can still do.

What would you say to someone who has found out they have relapsing MS?

Do not feel like life is over. There are many treatments available today to help people with MS. Make the adjustments to your life style that you need to make and as I already said focus on what you still can do and enjoy life!

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