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ActiveVoices™ Participation Agreement

By clicking on this box, you should acknowledge and agree that your participation in the ActiveVoices program is completely voluntary. You understand that the role of your Mentor is to provide you with information about his or her own personal experiences living with MS and MS therapies. Your Mentor is an MS patient—not a physician or nurse with medical expertise. Therefore, your Mentor is trained not to provide you with, and you should not rely upon your Mentor for, medical treatment advice. You should understand that your MS and treatment experiences may differ from your Mentor's experiences and that any questions you have about possible side effects, risks or potential benefits of treatment, adverse events, or your MS disease course should be directed to your own health care provider. You also understand that your Mentor is a volunteer and Biogen Idec does not compensate your Mentor for providing you with the mentoring services. Your Mentor does not speak on behalf of or represent Biogen Idec. Your mentor is limited in what he or she can say about Biogen Idec's products by rules from the Food and Drug Administration to information that is consistent with the applicable product's approved label. You may stop participating in the ActiveVoices Mentor program at any time. If you have any concerns or questions about what your Mentor says to you, your relationship with your Mentor, or the ActiveVoices program in general, please feel free to contact MS ActiveSource at 1-800-456-2255.

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Peer Mentor Profile

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Sandra S., Diagnosed with MS in 2005, Female, 45-54, Single

How did you first find out about your relapsing MS?

I started getting star lights, thinking I was getting up too quickly. Then at night I would get double vision, so I thought I was tired and went to bed. This continued, so I started taking vitamins, still no change, so I went to the eye doctor. He advised me that I needed glasses, but that was not the reason for my symptoms, he advised me to follow up with my family doctor, so I did. Two days later I went to see my family doctor and my eyes did their crazy thing and he sent me for an MRI, and I was diagnosed.

What emotions did you experience when first diagnosed with relapsing MS?

I was confused as my doctor thought it was a sinus problem and never mentioned an autoimmune disease, so when I found out I was totally blown away and in disbelief. I was scared of all of what I didn't know.

How has your outlook changed today regarding your relapsing MS?

I am educated about the disease so I know what to do to make my life work so the disease doesn't take over my life. MS affects my life, do not get me wrong, but it doesn't run my life. I know I am in control because I have the knowledge.

What would you say to someone who has found out they have relapsing MS?

Keep active. By that I mean, keep your mind and your body active. Stay in tune to what you are able to do so if it changes you are aware of it.

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