Loved one was diagnosed with multiple sclerosis

Most caregivers of those with multiple sclerosis are family members and spouses whose support and devotion are unquestioned and unconditional. Chances are, when your loved one was diagnosed with multiple sclerosis, you accepted that you would be by your loved one's side through it all. But love and devotion sometimes need a little help. Building skills, getting help from your community, and advocating for the needs of you and your loved one can all ease the challenge of multiple sclerosis.

Get training.
If your loved one asks you to give the AVONEX injection, make sure you call AVONEX services to receive proper training. You may also want to consider taking a caregiver's training class. A class can help you get training in certain practical skills that may be needed to assist someone with a chronic disease. A course can also teach you strategies for making sure you don't overdo it and burn yourself out. Ask the healthcare provider or nurse, call your local hospital or community college, or check online for classes designed especially for caregivers.

Be an advocate.
Being a caregiver can be about more than providing practical, everyday assistance. It can also mean being an advocate for your loved one. Many caregivers participate with their loved ones in multiple sclerosis fundraisers or in events that draw attention to the needs of people with multiple sclerosis. Aside from helping the larger MS community, being an advocate can help promote the needs of caregivers and help you connect with additional sources of support.

Keep communicating.
Good communication may be the most important aspect of any caregiver relationship. Maintaining good communication between you and your loved one is extremely important. By talking often and listening to each other, you can work out any difficulties that may arise. Be patient and open to hearing each other's needs.

Connect with other caregivers.
Caring for someone with multiple sclerosis doesn't mean being the only source of support. Over 400,000 Americans have multiple sclerosis and for every one, there are more who care for them. Contact your local chapter of the National Multiple Sclerosis Society to find other sources of support or to connect with other caregivers.

Ask for help.
When friends and neighbors ask what they can do to help, tell them. Don't pass up offers of help out of a misguided sense that you have to do it all. Remember that people feel good when they know they can help a friend. No doubt, the people who care about you see your devotion to your loved one and want to help you have a break. And they don't expect anything in return but heartfelt thanks.

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